View the signed Mayoral Proclamation Neurofibromatosis Awareness Day - June 8, 2019
WHEREAS, NF Upper Midwest is observing Neurofibromatosis (NF) Awareness Day on June 8, 2019 to educate the public about this rare genetic disorder; and
WHEREAS, More than 100,000 Americans are living with NF and one in every 3,000 babies are born with the disorder, yet it is still relatively unknown to the public and at the present time there is no cure or treatment; and
WHEREAS, NF, which affects all populations regardless of race, ethnicity or gender, is a progressive and unpredictable disorder that can attack every function of the body, causes tumors to grow on nerves, and symptoms vary in degree of severity including brain tumors, deafness, bone deformities, cancer, learning disabilities and facial and body disfigurement; and,
WHEREAS, NF Upper Midwest leads efforts to promote efforts to sponsor kids to go to camp and awards grants to attend related conferences; and,
WHEREAS, NF Upper Midwest continues to lobby to ensure continued federal funding of NF-related research and on June 8 will host the Step Up for NF Walk at Lindenwood Park.
NOW, THEREFORE, BE IT RESOLVED, That I, Timothy J. Mahoney, Mayor of the City of Fargo, do hereby proclaim June 8, 2019 as
NEUROFIBROMATOSIS AWARENESS DAY
in the City of Fargo, North Dakota.
IN WITNESS WHEREOF, I have hereunto set my hand and caused the Seal of the City of Fargo, North Dakota to be affixed this 8th day of June, 2019.